12 – IPOPI

The International Patient Organisation for Primary Immunodeficiencies (United Kingdom) – www.ipopi.org

SCIDNET Principal Investigator: Johan Prevot (johan@ipopi.net)

International Patient Organisation for Primary Immunodeficiencies, is the Association of national patient organisations dedicated to improving awareness, access to early diagnosis and optimal treatments for primary immunodeficiency (PID) patients worldwide.

Established in 1992, IPOPI works as the global advocate for the PID patient community in cooperation with its National Member Organisations (NMOs) and key PID stakeholders.